Finalist: Star Tribune, by Chris Serres, Glenn Howatt and David Joles
Nominated Work
To the judges:
At a garbage dump in western Minnesota, adults with Down syndrome spend their days collecting trash for $2 an hour. At an office park outside Minneapolis, workers with brain injuries scrub toilets for half the minimum wage. In a remote north woods town, a young woman with bipolar disorder escapes from her group home and throws herself in front of a speeding car.
These are among the dozens of people interviewed by Star Tribune journalists Chris Serres, Glenn Howatt and David Joles for "A Matter of Dignity," a five-part series on Minnesota's archaic treatment of people with disabilities. What began as a routine inquiry into maltreatment at a rural group home evolved into a six-month investigation that exposed the systematic segregation and dangerous neglect of thousands of vulnerable adults. The result was a crushing portrait of people who are denied fundamental human dignity -- in housing, at work, in government services, even in the yearning for romance and intimacy -- by a system that almost certainly violates federal law.
Among their findings:
Hundreds of adults with disabilities have been sent against their will to live in remote group homes, chaotic and dangerous places that are now a source of 911 calls in rural counties. Using mapping software to analyze more than 5,000 housing records, the reporters documented that hundreds of vulnerable adults are assigned to facilities more than 100 miles away from their families.
Minnesota has quietly built a $1 billion industry of sheltered workshops and residential group homes that consign thousands of adults with disabilities to lives of neglect and abuse, while isolating them from mainstream society. Minnesota, once a pioneer in disability care, has become the most segregated state in the nation for working adults with developmental disabilities.
Hundreds of families who sought state aid to break out of this suffocating system were forced to wait years to get financial assistance, even though nearly $1 billion in state disability funds had gone unspent by Minnesota counties. One family waited 14 years for state assistance; another is still waiting after 10 years.
To tell the stories behind the numbers, Serres and Joles spent hundreds of hours visiting adults with disabilities, an exercise that proved surprisingly difficult. Court-appointed guardians routinely refused access to their wards -- even adults who had consented to give interviews -- arguing that they were incompetent to speak for themselves or that guardians had the power to overrule their free-speech rights. At one point, the Star Tribune threatened legal action against Lutheran Social Services, one of Minnesota's largest nonprofits, to challenge rulings by guardians. At another, Serres was threatened with arrest outside a group home, even as he read the applicable state statute to a police officer. The three journalists nevertheless built trust with dozens of families, then spent hundreds of hours conducting interviews, tagging along on dates, visiting sheltered workshops, attending church services and simply listening.
Their reporting also took them to Vermont, a state viewed as a model of inclusion for people with disabilities, for a story that drove home Minnesota's outlier status and showed readers what other states have achieved.
Time and again during these months, their sources said it was the first time anyone had ever asked about their aspirations, detailed their frustrations and given voice to people who are largely invisible in their own community.
From the beginning, we decided that a core technique of the series would be to let disabled adults tel their own stories insofar as possible. To that end, the Star Tribune created a digital presentatiomn with a landing page that married immersive storytelling tools such as audio and portrait photography to let powerless people speak for themselves, introducing readers to fellow citizens who have been consigned to inferior care and hidden from view for decades.
The resulting series shocked Minnesotans and produced almost instant action. Within a week, Gov. Mark Dayton said he expected reforms from the 2016 Legislature, and two prominent lawmakers announced a bill to overhaul Minnesota's Medicaid disability funding. Within a month, the state's workforce agency said it would phase out subsidies to sheltered workshops and instead promote integrated employment for people with disabilities. In January 2016, state officials announced a dramatic drop in waiting lists for disability assistance, a result of actions taken after Serres' first story on the epic waits.
The response from readers was even more powerful. The series generated scores of letters and hundreds of online comments: Many parents defended the sheltered workshop system, but many more said they had been unaware of its flaws and thanked the Star Tribune for highlighting better options. Our profile of two young women with Down syndrome generated a particularly moving letter:
I am Suzanne Sukalski's big sister and Erin Ebert's friend. I simply wanted to thank you for the importany work you are doing to expose the challenges and limited opportunities available adults with cognitive and intellectual disabilities.
When my sister first saw her pictures and video online, she cried and said, "My heart hurts."
We are proud to submit "A Matter of Dignity" for the Pulitzer Prize in Local Reporting.
Sincerely,
Rene Sanchez
Editor and Vice President